so there was this dreaded medical test that luke was going to take. it has been talked about for years and had finally been scheduled.
my stomach has been firmly in knots in anticipation of the testing day.
the o n l y thing that i could point to as a gift of that day were the diddy riese cookies that we were all going to get after the very, very long and rough day.
bob and i have a steadfast and wonderful relationship with these cookies and they have been at all of the major events in our lives and on plenty of mundane tuesdays as well.
yesterday, i briefly asked one of luke’s specialists if he had any thoughts about said test and he lovingly but firmly said “don’t even test him.” i have trusted this man with luke’s life before and i still do today.
so, today, i get to cancel the awful test and breathe deeply and know that we will get the cookies again soon, just not after that formerly dreaded day.
we weren’t sure that this boy would ever make it out of my womb alive. and here we are, celebrating his 16th birthday! he is the very best birthday gift that i have ever received.
as a photographer, i am always searching for the light.
i know that photography has helped me process the grief i have experienced in different seasons of my life. i recently experienced another wave of heartache and decided that i would lean into it and photograph what the dim feelings felt like. and here are the results of taking those photos.
this is my son, luke. and his name means bringer of light. and that he does.
the irony is that i was trying to photograph the dimness inside of me, but all i could capture was the light.
On the contrary, those parts of the body that seem to be weaker are indispensable, and the parts that we think are less honorable we treat with special honor. And the parts that are unpresentable are treated with special modesty, while our presentable parts need no special treatment. But God has put the body together, giving greater honor to the parts that lacked it, so that there should be no division in the body, but that its parts should have equal concern for each other. If one part suffers, every part suffers with it; if one part is honored, every part rejoices with it. 1 Corinthians 12:22-26
i stumbled upon a draft of a blog post from 2014 that i never remember creating.
these pictures were from a normal day. nothing special. but now as i look back, i see that this moment in time was everything. this is what life is all about. these little in-between moments.
as we embark upon sending our second born away to college, i am desiring to go back to the good old days where i had little kids crawling all over me and requiring every ounce of me.
i have heard from wise women that this new season only gets sweeter, but i feel as though i am in transition in labor, where what is ahead is unknown and, frankly, terrifying.
i long for those days from the past, where i was able to immerse myself in motherhood. and yet, i see that with my sweet Luke, i still get to be there. right smack in demanding stages of motherhood (in the best of ways) as he will always prefer to be velcroed to my side.
this moment eleven years ago was certainly the good old days. but then i remember that today is also the good old days.
i thought that things were already hard. because when i compare my life to others’, i tend to find myself in a horrible place (no surprise there). but then this new dark cloud swept in and threatened to loom overhead forever. to never ever leave. so what i thought was already difficult, became something nearly impossible for my mind to wrap around.
and i’ve been there before, imagining myself being parked under that stormy rain cloud, without a break in the weather. without a little dot of sunshine bravely peeking through the deep dark clouds that hang in the sky.
i was there after the original neuro said things that she never should have said. i was there on that one valentine’s day when the official epilepsy diagnosis was delivered instead of flowers. i was there for six straight weeks when the end of the day proudly displayed dusk and as the seizures threatened to come and disrupt his and our sleep and threatened to come and disrupt his and our life.
i’ve been in that dark place, where i let my mind wander to where that dim path leads, many many times before.
and just a few weeks ago, i was there again, while a whole new stormy cloud threatened to spoil our lives.
but then, the wildest thing happened. and i was reminded yet again that God is the writer of this story. not me. He is the writer of luke’s story. of my story.
and He showed me (yet again) that i never ever can know or anticipate or prepare for the future. and that that is a really really good thing.
the future rests in what our good and sweet and “withholding no good thing God” will allow. the dark cloud, that was full of harsh relentless rain, that i was sure would never leave, just up and left.
and now, what i had believed was a normally tough situation, is actually bright and shiny and sunny again.
i see His beautiful rays of light pouring out of every single broken crack and into every single shattered space. into every missing part of a brain that God chose to not create while luke was in my womb. i am basking in the warm and holy and beautiful sunshine of our normal and intense and beautiful life.
i get stuck when i picture what life might become under a permanent rain cloud instead of trusting that there will always, always be rain clouds but that there will also always, always be sunshine.
For the LORD God is a sun and shield; the LORD bestows favor and honor; no good thing does he withhold from those whose walk is blameless. Psalm 84:11
But God chose the foolish things of the world to shame the wise; God chose the weak things of the world to shame the strong. God chose the lowly things of this world and the despised things— and the things that are not— to nullify the things that are, so that no one may boast before him. 1 Corinthians 1:27-29